建福的故事分享2014-02-14
 我於民國78年3月1日在高雄長庚醫院出生，過了九天後，就發現一種非常罕見的遺傳疾病，叫做「苯酮尿症」，也叫PKU。

    我剛開始還不是很認識這種疾病，以為只是大人們說說好玩的，所以我根本不在乎什麼飲食控制。
直到進小學二年級有一次，頭就忽然痛起來，痛的頭都快要爆炸了！經過了這次慘痛的教訓之後。我就開始向爸媽學習這種疾病和各類食品，並隨時做飲食控制，至今已經近五年了，所有的病痛都迎刃而解，目前課業可以像一般同學一樣勝任愉快！

    我最喜愛的課業是電腦、國語、音樂、美術、素描……等等，最愛的卡通是日本偵探片柯南及神奇寶貝…，爸媽工作之餘，最愛聽音樂並聽聽我與弟弟（今年八歲）共鳴琴聲或笛琴，與抒解工作壓力。
        
    我在學校雖然飲食和別人不一樣，不能吃大魚大肉，必須定時服用藥物、飲用特殊奶粉，可是目
前的我身心卻和別人一樣健康。深信像媽媽跟同學們演講所說的：「苯酮尿症是遺傳疾病，不是傳染病。」



 
作者：網站管理員

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